Eur J Paediatr Neurol. Sep;16(5) doi: / Epub Jan Beyond the Burke-Fahn-Marsden Dystonia Rating Scale. Burke RE, Fahn S, Marsden CD, Bressman SB, Moskowitz C, Friedman J. Validity and reliability of a rating scale for the primary torsion dystonias. Download Table | Burke-Fahn-Marsden Dystonia Rating Scale from publication: Early Globus Pallidus Internus Stimulation in Pediatric Patients With.
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This item questionnaire is designed using an answer format in which the patient selects the statement that best answers each question.
Dystonia rating scales: critique and recommendations
The quality and accuracy of the pre-treatment assessment and the choice of assessment tools are crucial as they will affect all subsequent post-treatment comparisons. To facilitate research and clinical practices aimed at improving the assessment and treatment of dystonia syndromes, the Movement Disorders Society convened a task force to evaluate the dystonia rating instruments that have been used in published studies. VHI has been used to measure outcomes after interventions for a broad range of laryngeal disorders, including cancer and mass lesions, vocal fold polyps and cysts, and laryngeal dystonia 65 — Open in a separate window.
Dressler D, Bigalke H. The CDIP is a disease-specific patient-rated questionnaire that measures quality of life in patients with cervical dystonia Relationship between various clinical outcome assessments in patients with blepharospasm. The score obtained for eyes, mouth, and neck are each multiplied by 0. The range of scores is zero to 24, with higher scores indicating a greater disability.
Scales for oromandibular, arm, and task-specific dystonias require further assessment and there are no rating scales for some body areas, particularly the trunk and lower limbs.
Author information Copyright and License information Disclaimer. Leentjens The author has received research grants from the Michael J Fox Foundation and the Stichting Internationaal Parkinson Fonds, and received compensation for a presentation from Benecke Consultants. Each of these scales has been shown to have specific advantages and limitations in dystonia and all have been shown to have adequate clinimetric properties for the assessment of dystonia. Methods A systematic literature review was conducted to identify rating scales that have either been validated or used in dystonia.
Dystonia rating scales: critique and recommendations
Since most dystonia scales measure specific body regions, they should be applied to well selected and homogeneous patient groups. The CDIP is a disease-specific validated questionnaire. Curr Med Res Opin. Evaluating children with dystonia is difficult, because a wider spectrum of abnormalities may be commonly associated with dystonia.
Therapy with botulinum toxin. Primary dystonia is more responsive than secondary dystonia to pallidal interventions: Botulinum toxin type B de novo therapy of cervical dystonia: National Institutes of Health, Michael J.
Rationale and design of a prospective study: Clinimetric properties In the original validation study the reliability, inter-rater agreement, and concurrent validity of the FMDRS were demonstrated for the total score without reporting the level of agreement for ratings of the different body regions Jinnah has served as a consultant for Psyadon Pharmaceuticals and Savient Pharmaceuticals.
Consulting and Advisory Board Membership with honoraria: Only published or in press peer reviewed papers or published abstracts were evaluated. Items are rated on a 5-point scale. Therefore, rating scales in children are designed to evaluate secondary dystonias including a broad range of movement disorders different from dystonia i.
See other articles in PMC that cite the published article. Author roles Alberto Albanese Research project conception and execution, organization, manuscript writing and review. Pablo Martinez-Martin Research project conception and execution, organization, manuscript review. Otolaryngol Head Neck Surg.
Each scale was reviewed by one task force member.
Jankovic J, Hallett M, editors. Published by Elsevier Ltd. Rimabotulinum toxin B effects on pain associated with cervical dystonia: More variable results are reported in secondary dystonias and its efficacy in this heterogeneous group has xcale been fully elucidated.
Pallidal deep-brain stimulation in primary generalized or segmental dystonia. This scale is available only in English. Outcomes assessment following treatment of spasmodic dysphonia with botulinum toxin.
Therefore, VPQ still needs further validation in patients with dystonia. The Movement Disorders Society commissioned this task force to critique dywtonia dystonia rating scales and place them in the clinical and clinimetric context. The CDQ is a patient-rated health-related quality of life HRQoL measure for craniocervical dystonia, featuring cervical dystonia and blepharospasm.
A prospective blinded evaluation of deep brain stimulation for the treatment of secondary dystonia and primary torticollis syndromes. Stebbins Research project conception and execution, organization, manuscript review.
Medline on PubMed was systematically searched for relevant papers published up to June using the following query: Pallidal stimulation for segmental dystonia: Deep brain stimulation outcomes are typically reported using impairment-focused measures, such as the Burke-Fahn-Marsden Dystonia Rating Scale, which provide little information about function and participation outcomes or changes in non-motor areas.
Long-term effects of pallidal deep brain stimulation in tardive dystonia.
FMDRS – Fahn-Marsden Dystonia Rating Scale
Eight scales were excluded, because evaluating secondary dystonia, requiring measurement devices, or having no potential use in dystonia. Treatment strategies for dystonia. Rush University Medical Center. Symptomatic and functional outcome of surgical treatment of cervical dystonia.
The scales are grouped based on the affected body region they intend to explore. The FMDRS showed good internal consistency and good level of inter-rater reliability for the total scores